Monday 11-15-21, 8:51pm:
In bed since 8:14pm. Just too tired to even watch tv. Still hungry. Will drink tea. Which means getting up and out of bed. Ugh. Stopped eating at 6:30 pm. Trying to hold onto that. I really need all my energy for tomorrow.
So tired.
So.. If Garmin works the way I think it does from this video... https://youtu.be/lGPea64p4wY
I can manage fatigue by watching the recovery time... it says 33 hours right now. My goal would be to rest enough to get it down to 29 hours and keep optimizing from there. I'd have to spend a week in bed though... so maybe not.
Progress as of today: 72 lbs lost so far, only 85 lbs to go!
11-15-21, 10:15 am:
2 earth shattering discoveries...
Ginseng tea (apparently it has to be the brands Prince of Peace or American Ginseng, 2 bags a day but no more) does actually help with fatigue.
This news article... Cats may actually have imagination and planning because they have spatial object permanence... Cats May Have a More 'Profound Mind' Than We Thought http://newser.com/s313276
Mama Cat is definitely smart... She somehow knew I had fasting labs today and woke me up on time by scratching at my head. Gently.
Progress as of today: 72 lbs lost so far, only 85 lbs to go!
My dogs read the article & call BS LOL
Sunday 11-14-21 12:34pm:
oh windfall. Just had to post. Someone on Noom answered my question about recovery time and theyad a Garmin too. Apparently Garmin tells you how much recovery time you need, up to 4 days and I never saw it because it's on the watch not the app.
https://www8.garmin.com/manuals/webhelp/fenix66s6xpro/EN-US/GUID-DAC27D10-886A-4EA8-8339-674479E9574A.html
off to face whatever Dad is mad about. I went grocery shopping without him before asthma this am.
Also, another 14 h fast nailed. Resting todaya my knee feels weird.
Progress as of today: 72 lbs lost so far, only 85 lbs to go!
Oh watch that knee!
Sat 11-13-21: A little proud of today. I woke up at 6am with help from Mama Cat. I took meds and got up at 7 for coffee and to write book club notes. I finished early and kept it brief. Then I went for a run. I was shocked when I realized I ran a minute without stopping. At the end, Garmin gave me a "Fastest run yet" badge. I shaved a minute off my mile time. ThenI ran book club. The guy who flaked in the meeting this week was the only one who showed and we talked. Turns out he doesn't know anything about profit shares for founders. Silent eyeroll.
Spent the rest of the day in the most severe asthma attack of my life. Dad was determined to get me to take him to the grocery store. I couldn't talk without making it worse, but I did offer the museum. He said he needs a cart. I offered Home Depot. He insisted on the grocery store. I said no buckets of ice cream, he flipped out. I retreated to my room and let my aunt know that I had offered reasonable alternatives... she said I should take him and let him buy his stuff... except she then doesn't haveto take care of him or watch him struggle and refuse to go to the ER. I suggested we both find an online caregiver support group we can both join, or maybe she could come out here for a week and help him figure it out and give me a break. We'll see what she says.
In any case I did everything I possibly could today, every minute and that's what counts. Letting it all go. Cpap comes on wednesday.
Inch by inch. Pebble by pebble.
Progress as of today: 72 lbs lost so far, only 85 lbs to go!
oh, what a great idea to join a support group online sorta like this but centered on exactly the tips and support you are looking for with dad. nice job thinking about that. i have forgotten to also do the same. maybe i should look for one with people looking to change careers, etc. something to help me....i prob won't...but your idea for yourseelf is good bc your dad is a big part of your life.
Nothing personal to her, but your aunt has no idea. However, I do believe that she intends to be helpful with her comments and suggestions. She just has no clue. Not one Scooby Doo.
Friday 11-12-21:
Successful day. No workout, but I ate healthy and took the stairs 3x. Saw an East West doctor at UCLA today. He says the exercise / REM sleep issue probably isn't bad enough to be considered PEM, but if I follow the guidelines I will have an easier time getting all my workouts in... which is all I am asking for. I just want to go for a run, do some yoga, spend time with my friends and get a job. He also recommended American Ginseng tea to help with the hurdles.
And now I also know what windows to pook at to figure out what is affecting what. If I can measure it, I can manage it.
https://www.verywellhealth.com/exercise-for-fibromyalgia-chronic-fatigue-syndrome-716045
Also I have to thank my kitty kat for all the help getting up this morning. I don't know how she knew that today was important, but she did something she never does... she woke me up by sitting on my shoulder and batting at me with the tips of her claws very, very gently. After all that insomnia last night, I really needed that assist. Thank you, kitty kat. What a good momma cat.
Progress as of today: 72 lbs lost so far, only 85 lbs to go!
Don’t know what PEM is. Will google. Do know UCLA is one of the best hospitals in the country.
Awwww to your kitty :) my pigs do something similar when I fall asleep with them still on me. They start to make little noises and move around a little and one of them will nip me lightly with his teeth on my face
The link that you provided was very interesting. I see a LOT of similarities in the Fibro/CFS and the experiences my Husband has with his AS. The challenges that physical exercise pose really frustrates my Husband, since most of his efforts must be mostly diet-related (restriction of calories), since he can't offset calorie intake with exercising.
Anyway, what I'm saying is that I found the article to be very helpful. I like how you said that if you follow the guidelines, you will have an easier time doing what you want to do.
Momma Cats are the best cats - they take care of their families :-)
If you don’t have ADHD and remember to check the messages. Last night I was going to clean the kitchen, but body battery said rest and I was able to get REM and get up on time for fasting labs this morning.
Thursday 11-11-21:
Tried to get dad out to walk to Mc Donalds but he was so fussy, I gave up and went for him and brought him back 2 sausage sandwiches so I coiuld have a peaceful day writing challenge content. Which I did incessantly morning to night. I don't know how I had the presence of mind to get up and make dinner or go for a run. Tried to wake dad up for dinner and it was impossible. I had to nuke his dinner to warm it up 4 hours later and he got fussy because the texture changed. I gave up and wrote more challenge content... a 1 week adhd friendly meal plan for shopping at Trader Joes... because one of the women in the coworking group asked me for guidance... so I did a rough outline of it, spent way too much time on it... but I will get feedback by giving it to her right away.
inch by inch
Progress as of today: 72 lbs lost so far, only 85 lbs to go!
All in all, it sounds like it was a good day. We have to pick and choose the battles we fight and when. I'm sorry the insomnia is so bad :-(
I hope your appointment today is positive.
haha, i'm sure the woman will appreciate your Trader Joe's meal outline!
Tuesday 2021-11-9:
Sigh. Team meeting today did not go well. One of the guys turned around and balked completely in the meeting. Bizarre because he was the biggest advocate. I reached out but haven't heard back yet.
I'll keep cranking on it. Worst that happens is I have a reason to get out of bed in the morning... Then I release for a few months in January as a fun toy. Go write the challenge content. Do what you said you would.
I also ran a little today. I have been feeling a little better consistently 2 weeks in a row. My VO2 max went up a point yesterday, but now it is back down.
COVID antibody test came back positive. I'm a long-hauler. It's not all in my head.
Trudging along, step by step.
I can do this... I can I can I can.
Progress as of today: 72 lbs lost so far, only 85 lbs to go!
Of course you can do this! HUGS!
Wow, I think that's kind of a game-changer. Is your doctor treating you for long-hauler issues now? Or what's the plan moving forward?
I'm sorry to hear about your meeting. The next one WILL be better.
that's interesting about the guy in the meeting totally acting out...you may be able to slowly establish a reconciling with him, or he may have just changed his mind and then i guess it's best he is left out of the plan / group completely. time will tell, i guess. maybe he feels he isn't "being heard," but maybe not.
oh no...but your dad never got covid??
also, i read some of those tests are UNRELIABLE. so you never know. bc the test is similar to a regular cold antibody test. teacher friend of mine also came back positive...i don't believe it. she's never around like anyone.
Wed 2021-11-3:
Got the Cpap prescription. Why was it so hard to get to this point? Will be a 6-8 month wait due to worldwide shortages to do it through insurance. Looking into a refurbished one tomorrow while I wait. I need something immediately, I can't keep going on like this. Now that I know it's appropriate I just want to cry that I didn't straight out buy one.
So tired.
Progress as of today: 72 lbs lost so far, only 85 lbs to go!
sorry for the extra waiting time...but i'm very glad you will soon get it. xoxo :)
Bear has good advice.
one of my coworkers, young one at 24yo, has asthma and didn't clean her inhaler or rince (whatever it is) as it is supposed to...leads to bronchitis and infection. you'd think she would just listen to the doc! so she's out with bronchitis.
Tuesday, 11-2-21:
Oi. The scale climbed to 245.
Pulmonology appt is tomorrow. Everything is printed out. Praying I get REM so the appointment is useful. Today I slept 10.5 hours, but only got 30 min REM. For that length of time it should be 2.5 hours of REM. I feel like my brain is in a plastic sack and can't breathe.
Adding last night's prep for today:
Rebooting my 10 habits:
When is your 2nd sleep study scheduled for?
Good idea, I think, to get back to your daily goals checklist. I think it gives you a good indicator of what worked (for any given day) and what needs help.
Nice job to think about your good habits and tasks.
Monday 11-1-21:
No workout today. I went to the GP to ask for a COVID antibody test and an amino acid test. He did both, then did one better and ordered a second sleep study. Yay. I could have worked out this afternoon, but I prioritized groceries, chores, laundry and making my dad a burger.
Onwards and upwards. One pbble at a time.
Progress as of today: 76 lbs lost so far, only 81 lbs to go!
I too chose other priorities this morning over a weights workout. Peace of mind is golden. I can work out with weights tonight.
Essentially, COVID can cause sleep apnea, specifically during the REM cycles so patients get deep sleep but not REM sleep no matter how long they sleep, and it is exacerbated by exercise.
It was here in December 2019… and diseases don’t have hard and fast start dates like the IRS.
https://www.infectioncontroltoday.com/view/covid-19-may-have-hit-the-u-s-earlier-than-previously-thought
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I will watch the video tonight when I have more time. Thank you for sharing!
I hope that you are able to recover sufficiently to have more energy today (Tuesday). I'll be thinking of you today.
More like active rest.
horn_of_plenty on 11/16/2021:
i KNOW what you mean...sometimes it's easier to stay in place then get up and do ANYTHING! sometimes this is what helps me not reach for more food at dinner....i'd rather stay in place on the couch!
i hope you get energized soon after your rest!
My problem is that everything is such a mess and a wreck, I can't not keep getting up and do stuff... I'm trying to push myself NOT to get up and move this week.
Brett on 11/16/2021:
Garmins are know it alls. I want one.
OMG... You should have seen the running store I went to today... they had a practical monument to Garmin... Like we should all go oooh aah like the vending machine martians from Toy Story.
Donkey on 11/17/2021:
I still have to watch the video, but I'm starting to think like Brett: I think I want a Garmin too.
I love it deeply. My only regret is not buying the $945 Fenix 6 pro solar... but tight budget. Forerunner 245 at minimum. Should be good sales for the holidays.